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    Beyond The Pale: Folklore, Family and the Mystery of Our Hidden Genes

    £13.49
    £14.99
    Price-Match is available in-store for recommended titles in CCCU module handbooks
    ISBN: 9781909762336
    Products specifications
    Attribute nameAttribute value
    AuthorUrquhart, Emily
    Pub Date11/04/2016
    BindingPaperback
    Pages292
    Publisher: UNKNOWN
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    Emily is drawn to understanding her child's albinism by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

    Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.
    Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.